Christmas bauble

Come to our

Christmas

Bazaar

 Christmas bauble

Saturday 1st December 10-2

Gifts and Crafts

 

Christmas Cards

 

Home Baking & Preserves

 

Children’s Toys & Books

 

China & Glass

 

Plants, Books & more

 

Guest craft stalls:greeting cards, gem stone & other jewellery, wood turned & knitted & sewn items, pottery.

 

SE Herts RSPB

 

Refreshments & Light Lunches

 

Entry 50p.

10% of proceeds to Fight Back Against Cancer (UK) and

SWAN – Syndrome Without a Name.

 

 

SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.
Established in 2011 thanks to a five-year grant from the Big Lottery Fund and received further funding with a three-year grant in 2016.
It is estimated that around 6,000 children are born every year with a syndrome without a name. Their Big Ambition is that every family affected by a syndrome without a name has the support they need, when they need it, regardless of whether they have a diagnosis or not. They want it recognised that being undiagnosed is not always a temporary stage; the genetic cause of some conditions may never be known. They want every child and young adult with a syndrome without a name to receive high-quality coordinated care and support, both in hospital and at home.Their aims are-
 
DEVELOP
Develop and support a community of families of children affected by undiagnosed genetic conditions.
SUPPORT
Support the development of high quality information and services for families of children affected by undiagnosed genetic conditions.
RAISE
Raise public and professional awareness of undiagnosed genetic conditions and the unique challenges faced by affected families.
Their support- Enables families to make contact with others who understand the unique challenges of raising a child affected by an undiagnosed genetic condition.
They support families in hospital and at home offering 24/7 access to information and support.
They run regular free events to bring families together and provide opportunities to make precious memories. These include stay and play sessions, coffee meet ups and regional day trips to theme parks such as Peppa Pig World and Flamingo Land.
They support siblings to make new friends who understand how difficult having an undiagnosed brother or sister can be.
They educate professionals about the issues faced by families affected by a syndrome without a name and help improve services so that all families receive high-quality coordinated care and appropriate testing/treatment.

 The SWAN UK team is a mix of paid employees and volunteers offering support and information to families and professionals across the UK.
Their work is also supported by the wider Genetic Alliance UK team. Genetic Alliance UK registered charity numbers: 1114195 & SC039299.

Fight Back Against Cancer (UK)

Fight Back Against Cancer (UK) is a Broxbourne based charity, and was started in 2013 by a family who between them had lost 14 loved ones to various cancers. We felt the need to Fight Back Against Cancer, and we offer the opportunity for anyone similarly affected to join us and FIGHT BACK.

. We give small grants to researchers working to cure or ameliorate cancers.

* Anyone who has been bereaved by a cancer, or is suffering long-term from a cancer, can come to us and nominate a cancer as a target for a research grant. Many people find this helps their own recovery during grief and bereavement.

* We track down the researchers ourselves, and get to know their research history.

* The grants are for equipment or medical chemicals.

* Fight Back Against Cancer (UK) is registered with H.M.R.C. as a charity, for Gift Aid.

* We are all volunteers; we don’t have an expensive office, so no staff salaries and no rent. We won’t waste a penny of your donation.

* Here are some of the researchers and projects we have given a small grant to:

May 2015 Professor Alan Ramsay, Kings College London, working on Non-Hodgkinson’s Lymphoma

July 2016 Children’s Brain Tumour Research Centre, Nottingham. Grant paid for

1) Specialist drugs cabinet to store tissue samples and chemotherapy drugs;

2) Electronic pipette, for standardizing drug samples

October 2016 Dr Claire Palles,Oxford Centre for Cancer Gene Research. Researching Hereditary Bowel Cancer